Testing, Testing, One, Two, Me

mrboosmum:

This post means a lot to me, although few people have read it. I wrote it a year ago, the day before Boo had the diagnostic tests that would confirm he had quad CP, severe brain damage and an X-men chromosomal abnormality no one understands. In so many ways out lives have moved on, but I still play triage every day. And I feel just as strongly about my desire not to fail my kids no matter how testing things get.

Originally posted on Premmeditations :

It’s another big day in Boo Land tomorrow. I know… I need a better blog post opener than that. I’ve been overusing it lately. But to be frank, that’s because we’ve had a tonne of big days in Boo Land lately what with all the anniversaries of what happened or should’ve been. I’m done with it all now. I want the big days to end. I want a bit of peace. I think, I hope, tomorrow might be putting us on the road to that elusive destination.

You see, tomorrow Boo has his big diagnostic tests: MRI (to get the completest picture of his brain damage to date), a lumbar puncture and full bloods and urine tests to rule out genetic or metabolic disorders. We are, hopefully, on the path to diagnosis. A path, I hope, that leads to cerebral palsy, for that, unlike genetic or metabolic disorders, doesn’t scare…

View original 1,218 more words

About these ads

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s